Eh!woza: intersection of art and science to engage youth on tuberculosis

  • Ed Young Wellcome Centre for Infectious Diseases Research in Africa, Institute of Infectious Disease & Molecular Medicine, University of Cape Town
  • Bianca Masuku MRC/NHLS/UCT Molecular Mycobacteriology Research Unit, Department of Pathology and Institute of Infectious Disease & Molecular Medic, University of Cape Town
  • Barbara Torresi Independent Evaluation Consultant, South Africa
  • Digby Francis Warner MRC/NHLS/UCT Molecular Mycobacteriology Research Unit, Department of Pathology and Institute of Infectious Disease & Molecular Medicine, University of Cape Town
  • Anastasia Sideris Koch Molecular Mycobacteriology Research Unit, Institute of Infectious Diseases & Molecular Medicine, University of Cape Town

Abstract




Despite substantial expenditure by national tuberculosis (TB) programmes, significant efforts by advocacy groups, and heavy investment in clinical and biomedical research, TB remains a health emergency disproportionately impacting the poorest and most vulnerable in southern Africa and other endemic regions. Personal experiences of TB are varying and contrasting in these areas where misconception, stigma and taboo are commonplace. An urgent need therefore exists for projects that engage community members as active partners in reducing the impact of TB and other diseases. Eh!woza aims to address this need by fostering collaborative interactions between biomedical TB researchers, a conceptual artist, a non-governmental organization, and young people living in Khayelitsha, a township outside Cape Town. In a series of workshops, the project engages high-school learners with biomedical TB research and provides space, guidance and equipment for participants to produce documentaries about personal experiences of TB. Here, we describe the project’s growth, the results of a formal evaluation which suggest that Eh!woza is responsive to changing dynamics within the study setting, and preliminary findings from anthropological research investigating how knowledge is configured within the project. Finally, we consider prospects for expanding the project and briefly discuss challenges whose resolution could ensure long-term sustainability.




Published
2018-05-29
How to Cite
YOUNG, Ed et al. Eh!woza: intersection of art and science to engage youth on tuberculosis. Global Health Innovation, [S.l.], v. 1, n. 1, may 2018. ISSN 2617-1155. Available at: <https://journals.uct.ac.za/index.php/GHI/article/view/520>. Date accessed: 14 dec. 2018. doi: https://doi.org/10.15641/ghi.v1i1.520.
Section
Practice perspectives